ALS, lou gehrig's disease, amyotrophic lateral sclerosis
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Feeding tube decision
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ALS education

Amyotrophic Lateral Sclerosis (ALS) goes by many names—Motor Neuron disease, Charcot Disease, Lou Gehrig’s Disease—but it has a singular progressive and devastating effect. Today more than 20,000 people are diagnosed with this disease. Great strides are being made in the quest to find the cure, but until then we need to find a way to deal with the day-to-day issues.

ALS Care provides the patient, their families and caregivers a trusted site to consult for the answers to the challenges to living more comfortably and productively. ALS Care will make available tools to use making communicating and living easier.

CLICK HERE to see a short video about the Feeding Tube Decision.


EYE LANGUAGE Memory Board

Patients with ALS and their families report frustration when their speech becomes difficult to be understood. Time away from their computer or while on their BiPap/ventilators need not be periods of silence. The EYE LANGUAGE Memory Board was developed by Mary Beth in 1987 for speedy and efficient communication for the voice disabled patient. It is lightweight, portable and has been used by countless ALS patients, health care professionals in speech pathology, rehabilitation medicine and critical care departments. It is FREE!

CLICK HERE to download the memory board CLICK HERE to download the Memory board instructions


Helping Hands Document Library

Below you will find some very helpful documents, whether you are an ALS patient or an ALS caregiver, we all need a helping hand from time to time. Our documents are in PDF format; the Adobe Acrobat reader is free
and you can download it HERE.

Hospitalization

Preparing and surviving your hospital stay

Managing Your Symptoms

Some common ALS symptoms and how to deal with them

Hand Massage

See a short video demonstration of hand massage.

Breath Easy

Guide to easing respiratory issues

Patient Tips

Informative and helpful tips for the ALS patient

Can Your Hear Me?

Solutions for communication between the ALS Patient & Caregiver

Caregiver Help

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Japan Experience

ALS, lou gehrig's disease, amyotrophic lateral sclerosis