Mary Beth Geise - "The ALS Nurse"
While caring for her first ALS patient in 1983, Mary Beth Geise discovered what would become her life's passion: advocacy for the home care needs
of those suffering from ALS. For nearly 22 years, Mary Beth has dedicated her
career to this special group and their families. Today, Mary Beth has emerged
as a nationally renowned expert on ALS home care.
In 1986, Mary Beth opened a home health agency in Houston, Texas, specializing
in ALS care. Her agency hired and trained nurses and PCAs to act as competent and
reliable caregivers to ALS families. From routine tasks such as proper exercise
and lifting, to the more complex job of tracheotomy care, maintaining ventilator
equipment, responding to emergency breathing problems. The challenges of proper nutritional
guidance with swallowing difficulties, preparing for a gastrostomy (feeding tubes-
PEG) and maintaining bowel programs are just a few of Mary Beth's specialties.
Discharge planners, insurance case managers, and social workers often sought out Mary
Beth. The success of her work garnered attention in the marketplace, and in 1999
the national firm, Nursefinders, acquired her agency.
Aside from her personal experience both
with her agency, and as a nurse herself, Mary Beth has
a growing professional involvement with many organizations
and institutions. Mary Beth served on the MDA Board
in Houston, and has been a speaker for ALSA since 1988.
She has traveled the country, and also internationally,
acting as a consultant to groups in need of ALS patient
care education. Mary Beth's expertise was sought after
in 1991 by an American living in Japan with ALS. She
worked diligently with the small remote village to "qualify
the caregivers" like farmers and fisherman on the
proper care for this ventilator-dependent patient. Her
work has included consultations with numerous drug companies,
in particular, Sanofi-Aventis for Rilutek, the only
FDA drug approved to treat ALS. Mary Beth is also much
sought after for speaking engagements, most recently
presenting to a group of 200 nurses in Medicare/Palmetto,
S. C. on Home Care for ALS.
Mary Beth's extensive professional experience
is matched with her devotion to the ALS community. (Click here to learn more.)